It is currently Sun Apr 22, 2018 2:35 pm
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Urgent Questions
Did your child just throw up their meds?, Are you out of Vigabatrin?, This is the place to post questions that require an immediate answer. We realize that a lot of times questions seem urgent so please make sure this area is only used for the most urgent questions.
- 343 Topics
- 2841 Posts
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Last post by Irishmum
Sat Dec 30, 2017 3:32 am
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New To Infantile Spasms
Are you new to IS. It can be scary, confusing, and emotional. We have all been there. If you are not sure where to post or don't have any specific questions but just need someone that has been there to listen post here.
- 662 Topics
- 8197 Posts
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Last post by Irishmum
Thu Jan 18, 2018 2:28 am
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General Discussion
Discuss anything and everything IS here.
- 1922 Topics
- 20698 Posts
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Last post by takingitdaybyday
Mon Apr 16, 2018 3:20 am
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My IS Child
Start a thread about your child's journey and keep others updated. Please use your child's name and where you are from as the subect line. This is a great place to introduce us to your child an your family.
- 393 Topics
- 13996 Posts
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Last post by nick559
Tue Jan 02, 2018 2:11 am
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Moms Only
Discuss issues that only a mom would understand.
- 130 Topics
- 1917 Posts
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Last post by rhiannons
Sat Sep 19, 2015 7:26 pm
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Dads Only
This is a place for dads only.
- 11 Topics
- 52 Posts
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Last post by ImLawBoy
Fri May 17, 2013 6:35 pm
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Religious Issues
This is a place for those that would like to discuss religion and how it relates to your special needs child. It's not a place to debate religious issues.
- 15 Topics
- 114 Posts
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Last post by Bakingtins
Tue Jan 20, 2015 7:27 pm
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Anything Else - IS Related or Not
Although many things in our lives revolve around IS we all have other things going on so feel free to discuss them here.
- 203 Topics
- 2051 Posts
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Last post by jessica
Sun Dec 13, 2015 9:26 pm
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Suggestions
Please post any suggestions your have for the forum here.
- 44 Topics
- 229 Posts
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Last post by Melkeller
Thu Jul 09, 2015 4:34 pm
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Sección de discursión en español sobre Espasmos Infantiles
Este es un espacio para familias hispanohablantes donde pueden encontrar apoyo, información así como mantenerse en contacto entre ellas
Moderator: virgymay
- 6 Topics
- 19 Posts
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Last post by virgymay
Mon Feb 01, 2016 11:28 am
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ACTH (Acthar and Synacthen)
Many of our children have been on ACTH and many of us have asked the question "What can I expect?" Please post your experiences and questions here.
- 290 Topics
- 2272 Posts
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Last post by Irishmum
Fri Jan 19, 2018 5:54 am
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Prednisone
Discuss Alternatives to ACTH
- 63 Topics
- 487 Posts
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Last post by jessica
Mon Nov 06, 2017 7:58 am
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Vigabatrin
Post your Vigabatrin experiences and questions here.
- 224 Topics
- 2061 Posts
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Last post by support
Sun Jun 12, 2016 7:59 pm
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Conventional Treatments
Discuss conventional treatments that don't have an individual catagory.
- 87 Topics
- 614 Posts
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Last post by Irishmum
Thu May 28, 2015 11:17 am
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The Ketogenic Diet
Discuss the use of the Ketogenic Diet for seizure control.
- 205 Topics
- 1751 Posts
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Last post by lilygz
Wed Jul 26, 2017 1:35 pm
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Surgery
Discuss surgery options for IS.
- 43 Topics
- 808 Posts
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Last post by DanielJ
Mon Dec 31, 2012 2:41 pm
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Alternative Treatments
Discuss HBOT, Craniosacral Therapy, or anything else that may be considered an alternative therapy.
- 33 Topics
- 160 Posts
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Last post by mjaeger88
Tue Aug 15, 2017 2:22 am
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Medical Marijuana
A forum to discuss Medical Marijuana....No politics except in the "Legalize It" thread please.
- 9 Topics
- 50 Posts
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Last post by Katanic
Wed Apr 05, 2017 10:09 pm
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Cryptogenic/Idiopathic
Don't have a cause for your child's IS? Post here.
- 24 Topics
- 268 Posts
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Last post by Irishmum
Sun Sep 10, 2017 5:10 pm
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Sympomatic
Do you have a cause for their IS that you are aware of? If so please post here with the cause as the title.
- 47 Topics
- 358 Posts
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Last post by Gwen
Mon Aug 01, 2016 1:23 pm
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Down Syndrome
Does your child have DS in addition to IS?
- 26 Topics
- 143 Posts
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Last post by JLB181927
Fri Jun 05, 2015 10:11 am
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Seizure Free
If your child is seizure free tell us your success story.
- 120 Topics
- 1305 Posts
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Last post by jessica
Sun Apr 22, 2018 5:32 am
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Intractable Epilepsy and Other Seizure Disorders
Has you child progressed to a diagnoses other than IS.
- 12 Topics
- 70 Posts
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Last post by Irishmum
Thu Aug 22, 2013 12:09 am
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Lennox-Gastaut Syndrome
Many children with IS later become diagnosed with Lennox-Gastaut Syndrome. This is an area for parents to discuss LGS whether your child progressed from IS to LGS or it was their only diagnosis.
- 17 Topics
- 90 Posts
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Last post by LydiaUnicorn
Sun Mar 02, 2014 4:27 am
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Equipment Exchange
Do you have a wheelchair, stander, or other equipment that you are not longer using or are you looking for equipment? If so post it here.
- 20 Topics
- 58 Posts
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Last post by carried
Fri Jul 10, 2015 8:16 pm
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Therapy
Discuss and ask questions related to therapy here.
- 82 Topics
- 778 Posts
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Last post by jessica
Tue Nov 28, 2017 7:49 pm
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