The Infantile Spasms Community

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It is currently Sun Apr 22, 2018 2:35 pm

  • Urgent
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  • Urgent Questions
    Did your child just throw up their meds?, Are you out of Vigabatrin?, This is the place to post questions that require an immediate answer. We realize that a lot of times questions seem urgent so please make sure this area is only used for the most urgent questions.
    343 Topics
    2841 Posts
    Last post by Irishmum View the latest post
    Sat Dec 30, 2017 3:32 am
  • New To Infantile Spasms
    Are you new to IS. It can be scary, confusing, and emotional. We have all been there. If you are not sure where to post or don't have any specific questions but just need someone that has been there to listen post here.
    662 Topics
    8197 Posts
    Last post by Irishmum View the latest post
    Thu Jan 18, 2018 2:28 am
  • General Discussion
    Discuss anything and everything IS here.
    1922 Topics
    20698 Posts
    Last post by takingitdaybyday View the latest post
    Mon Apr 16, 2018 3:20 am
  • My IS Child
    Start a thread about your child's journey and keep others updated. Please use your child's name and where you are from as the subect line. This is a great place to introduce us to your child an your family.
    393 Topics
    13996 Posts
    Last post by nick559 View the latest post
    Tue Jan 02, 2018 2:11 am
  • Moms Only
    Discuss issues that only a mom would understand.
    130 Topics
    1917 Posts
    Last post by rhiannons View the latest post
    Sat Sep 19, 2015 7:26 pm
  • Dads Only
    This is a place for dads only.
    11 Topics
    52 Posts
    Last post by ImLawBoy View the latest post
    Fri May 17, 2013 6:35 pm
  • Religious Issues
    This is a place for those that would like to discuss religion and how it relates to your special needs child. It's not a place to debate religious issues.
    15 Topics
    114 Posts
    Last post by Bakingtins View the latest post
    Tue Jan 20, 2015 7:27 pm
  • Anything Else - IS Related or Not
    Although many things in our lives revolve around IS we all have other things going on so feel free to discuss them here.
    203 Topics
    2051 Posts
    Last post by jessica View the latest post
    Sun Dec 13, 2015 9:26 pm
  • Suggestions
    Please post any suggestions your have for the forum here.
    44 Topics
    229 Posts
    Last post by Melkeller View the latest post
    Thu Jul 09, 2015 4:34 pm
  • Sección de discursión en español sobre Espasmos Infantiles
    Este es un espacio para familias hispanohablantes donde pueden encontrar apoyo, información así como mantenerse en contacto entre ellas
    Moderator: virgymay
    6 Topics
    19 Posts
    Last post by virgymay View the latest post
    Mon Feb 01, 2016 11:28 am
  • ACTH (Acthar and Synacthen)
    Many of our children have been on ACTH and many of us have asked the question "What can I expect?" Please post your experiences and questions here.
    290 Topics
    2272 Posts
    Last post by Irishmum View the latest post
    Fri Jan 19, 2018 5:54 am
  • Prednisone
    Discuss Alternatives to ACTH
    63 Topics
    487 Posts
    Last post by jessica View the latest post
    Mon Nov 06, 2017 7:58 am
  • Vigabatrin
    Post your Vigabatrin experiences and questions here.
    224 Topics
    2061 Posts
    Last post by support View the latest post
    Sun Jun 12, 2016 7:59 pm
  • Conventional Treatments
    Discuss conventional treatments that don't have an individual catagory.
    87 Topics
    614 Posts
    Last post by Irishmum View the latest post
    Thu May 28, 2015 11:17 am
  • The Ketogenic Diet
    Discuss the use of the Ketogenic Diet for seizure control.
    205 Topics
    1751 Posts
    Last post by lilygz View the latest post
    Wed Jul 26, 2017 1:35 pm
  • Surgery
    Discuss surgery options for IS.
    43 Topics
    808 Posts
    Last post by DanielJ View the latest post
    Mon Dec 31, 2012 2:41 pm
  • Alternative Treatments
    Discuss HBOT, Craniosacral Therapy, or anything else that may be considered an alternative therapy.
    33 Topics
    160 Posts
    Last post by mjaeger88 View the latest post
    Tue Aug 15, 2017 2:22 am
  • Medical Marijuana
    A forum to discuss Medical Marijuana....No politics except in the "Legalize It" thread please.
    9 Topics
    50 Posts
    Last post by Katanic View the latest post
    Wed Apr 05, 2017 10:09 pm
  • Cryptogenic/Idiopathic
    Don't have a cause for your child's IS? Post here.
    24 Topics
    268 Posts
    Last post by Irishmum View the latest post
    Sun Sep 10, 2017 5:10 pm
  • Sympomatic
    Do you have a cause for their IS that you are aware of? If so please post here with the cause as the title.
    47 Topics
    358 Posts
    Last post by Gwen View the latest post
    Mon Aug 01, 2016 1:23 pm
  • Down Syndrome
    Does your child have DS in addition to IS?
    26 Topics
    143 Posts
    Last post by JLB181927 View the latest post
    Fri Jun 05, 2015 10:11 am
  • Seizure Free
    If your child is seizure free tell us your success story.
    120 Topics
    1305 Posts
    Last post by jessica View the latest post
    Sun Apr 22, 2018 5:32 am
  • Intractable Epilepsy and Other Seizure Disorders
    Has you child progressed to a diagnoses other than IS.
    12 Topics
    70 Posts
    Last post by Irishmum View the latest post
    Thu Aug 22, 2013 12:09 am
  • Lennox-Gastaut Syndrome
    Many children with IS later become diagnosed with Lennox-Gastaut Syndrome. This is an area for parents to discuss LGS whether your child progressed from IS to LGS or it was their only diagnosis.
    17 Topics
    90 Posts
    Last post by LydiaUnicorn View the latest post
    Sun Mar 02, 2014 4:27 am
  • Other
    Topics
    Posts
    Last post
  • Equipment Exchange
    Do you have a wheelchair, stander, or other equipment that you are not longer using or are you looking for equipment? If so post it here.
    20 Topics
    58 Posts
    Last post by carried View the latest post
    Fri Jul 10, 2015 8:16 pm
  • Therapy
    Discuss and ask questions related to therapy here.
    82 Topics
    778 Posts
    Last post by jessica View the latest post
    Tue Nov 28, 2017 7:49 pm

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