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The time now is Thu Mar 11, 2010 10:15 pm |
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| Forum | Topics | Posts | Last Post | |
|---|---|---|---|---|
| General | ||||
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Announcements A place for forum announcements. Moderators Mike, Moderator Team |
3 | 3 | Mon Dec 31, 2007 2:22 pm Mike  |
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Suggestions Please post any suggestions your have for the forum here. Moderators Mike, Moderator Team |
28 | 136 | Wed Mar 03, 2010 9:03 pm NoahsMum |
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Urgent Questions Did your child just throw up their meds?, Are you out of Vigabatrin?, This is the place to post questions that require an immediate answer. We realize that a lot of times questions seem urgent so please make sure this area is only used for the most urgent questions. Moderator Moderator Team |
93 | 916 | Tue Mar 09, 2010 6:43 pm Lisa Jane |
| Infantile Spasms | ||||
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New To Infantile Spasms Are you new to IS. It can be scary, confusing, and emotional. We have all been there. If you are not sure where to post or don't have any specific questions but just need someone that has been there to listen post here. Moderator Moderator Team |
290 | 2964 | Thu Mar 11, 2010 9:26 am justina |
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General Discussion Discuss anything and everything IS here. Moderators Mike, Moderator Team |
818 | 7244 | Thu Mar 11, 2010 8:59 pm keri kennedy |
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My IS Child Start a thread about your child's journey and keep others updated. Please use your child's name and where you are from as the subect line. This is a great place to introduce us to your child an your family. Moderators Mike, Nicole M., Moderator Team |
197 | 3811 | Thu Mar 11, 2010 9:42 pm Irishmum |
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IS and Older Children This is the place to discuss issues that effect older children that have had Infantile Spasms. Moderator Moderator Team |
12 | 72 | Mon Mar 01, 2010 6:06 pm camsmom |
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Moms Only Discuss issues that only a mom would understand. Moderators keri kennedy, Moderator Team |
60 | 894 | Thu Mar 11, 2010 9:50 pm Irishmum |
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Dads Only This is a place for dads only. Moderators Mike, Moderator Team |
5 | 14 | Mon Nov 02, 2009 3:21 am MarkPinkney |
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Religious Issues This is a place for those that would like to discuss religion and how it relates to your special needs child. It's not a place to debate religious issues. Moderator Moderator Team |
12 | 90 | Tue Dec 01, 2009 4:06 pm figgy |
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Anything Else - IS Related or Not Although many things in our lives revolve around IS we all have other things going on so feel free to discuss them here. Moderator Moderator Team |
63 | 616 | Wed Mar 03, 2010 7:24 pm peigal |
| Treatments | ||||
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ACTH Many of our children have been on ACTH and many of us have asked the question "What can I expect?" Please post your experiences and questions here. Moderator Moderator Team |
131 | 936 | Sat Mar 06, 2010 12:54 am perhayem |
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ACTH Alternatives Discuss Alternatives to ACTH Moderator Moderator Team |
16 | 101 | Mon Mar 08, 2010 2:37 am perhayem |
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Vigabatrin Post your Vigabatrin experiences and questions here. Moderator Moderator Team |
81 | 657 | Sun Mar 07, 2010 5:57 am jessica |
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Ganaxolone A new medication being evaluated for Infantile Spasms. Moderator Moderator Team |
13 | 40 | Fri Sep 19, 2008 11:52 am peigal |
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Conventional Treatments Discuss conventional treatments that don't have an individual catagory. Moderator Moderator Team |
31 | 233 | Sat Jan 23, 2010 2:55 am Irishmum |
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The Ketogenic Diet Discuss the use of the Ketogenic Diet for seizure control. Moderators gthall, Moderator Team |
46 | 174 | Thu Mar 11, 2010 5:36 pm rubyri |
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Alternative Treatments Discuss HBOT, Craniosacral Therapy, or anything else that may be considered an alternative therapy. Moderator Moderator Team |
15 | 77 | Wed Feb 10, 2010 1:31 am dylansdad |
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Surgery Discuss surgery options for IS. Moderator Moderator Team |
17 | 307 | Tue Feb 16, 2010 5:04 am aoliviac |
| Diagnosis | ||||
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Cryptogenic/Idiopathic Don't have a cause for your child's IS? Post here. Moderator Moderator Team |
10 | 82 | Tue Dec 15, 2009 4:55 am ArmyDad23 |
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Down's Syndrome Does your child have DS in addition to IS? Moderators Fortyhall, Moderator Team |
15 | 83 | Wed Jan 13, 2010 5:17 am Irishmum |
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Other Sympomatic Do you have a cause that is not listed? If so please post here with the cause as the title. Moderator Moderator Team |
18 | 108 | Sat Feb 20, 2010 11:06 pm figgy |
| After Infantile Spasms | ||||
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Seizure Free If your child is seizure free tell us your success story. Moderator Moderator Team |
56 | 328 | Thu Mar 11, 2010 3:41 am Irishmum |
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Intractable Epilepsy and Other Seizure Disorders Has you child progressed to a diagnoses other than IS. Moderators gthall, Moderator Team |
3 | 22 | Fri Dec 12, 2008 12:31 pm mommagarza |
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Lennox-Gastaut Syndrome Many children with IS later become diagnosed with Lennox-Gastaut Syndrome. This is an area for parents to discuss LGS whether your child progressed from IS to LGS or it was their only diagnosis. Moderators gthall, Moderator Team |
13 | 55 | Mon Nov 30, 2009 3:29 am Valeria |
| Other | ||||
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Equipment Exchange Do you have a wheelchair, stander, or other equipment that you are not longer using or are you looking for equipment? If so post it here. Moderator Moderator Team |
15 | 46 | Fri Mar 05, 2010 5:21 pm harrisonsmom |
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Therapy Discuss and ask questions related to therapy here. Moderator Moderator Team |
23 | 214 | Mon Mar 01, 2010 3:08 pm harrisonsmom |
| Studies, Inspiration, Other Articles, and Links | ||||
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Medical Studies and Reports Moderator Moderator Team |
12 | 33 | Sat Feb 27, 2010 7:06 pm jaimellong |
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Inspiration Moderator Moderator Team |
22 | 41 | Wed Feb 17, 2010 12:02 pm Irishmum |
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Other Articles Moderator Moderator Team |
4 | 5 | Sun Feb 25, 2007 2:44 pm Mike |
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Useful Links Moderator Moderator Team |
7 | 17 | Mon Feb 01, 2010 8:27 pm keri kennedy |
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