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The time now is Fri Jul 25, 2008 8:49 pm |
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| Forum | Topics | Posts | Last Post | |
|---|---|---|---|---|
| General | ||||
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Announcements A place for forum announcements. Moderators Mike, Moderator Team |
3 | 3 | Mon Dec 31, 2007 2:22 pm Mike  |
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Suggestions Please post any suggestions your have for the forum here. Moderators Mike, Moderator Team |
24 | 118 | Wed Mar 26, 2008 10:56 pm tkzrothzen |
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Urgent Questions Did your child just throw up their meds?, Are you out of Vigabatrin?, This is the place to post questions that require an immediate answer. We realize that a lot of times questions seem urgent so please make sure this area is only used for the most urgent questions. Moderator Moderator Team |
32 | 149 | Mon Jul 07, 2008 11:18 pm lms871003 |
| Infantile Spasms | ||||
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New To Infantile Spasms Are you new to IS. It can be scary, confusing, and emotional. We have all been there. If you are not sure where to post or don't have any specific questions but just need someone that has been there to listen post here. Moderator Moderator Team |
129 | 888 | Tue Jul 08, 2008 1:52 pm jenandjacey |
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General Discussion Discuss anything and everything IS here. Moderators Mike, Moderator Team |
315 | 1535 | Fri Jul 25, 2008 7:45 pm jenandjacey |
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My IS Child Start a thread about your child's journey and keep others updated. Please use your child's name and where you are from as the subect line. This is a great place to introduce us to your child an your family. Moderators Mike, Nicole M., Moderator Team |
101 | 567 | Fri Jul 25, 2008 4:25 am kmbruehl |
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IS and Older Children This is the place to discuss issues that effect older children that have had Infantile Spasms. Moderator Moderator Team |
6 | 16 | Fri Jul 04, 2008 11:30 pm S. de Klerk |
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Moms Only Discuss issues that only a mom would understand. Moderators keri kennedy, Moderator Team |
19 | 147 | Tue Jun 10, 2008 12:57 am 1003kristi |
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Dads Only This is a place for dads only. Moderators Mike, Moderator Team |
4 | 12 | Fri Sep 28, 2007 2:34 pm JoshuasMomLisa |
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Religious Issues This is a place for those that would like to discuss religion and how it relates to your special needs child. It's not a place to debate religious issues. Moderator Moderator Team |
5 | 36 | Sat Feb 16, 2008 1:50 pm Mike |
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Anything Else - IS Related or Not Although many things in our lives revolve around IS we all have other things going on so feel free to discuss them here. Moderator Moderator Team |
7 | 40 | Fri Jul 25, 2008 6:34 pm Jwebber |
| Treatments | ||||
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ACTH Many of our children have been on ACTH and many of us have asked the question "What can I expect?" Please post your experiences and questions here. Moderator Moderator Team |
69 | 323 | Thu Jul 24, 2008 8:00 pm keri kennedy |
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ACTH Alternatives Discuss Alternatives to ACTH Moderator Moderator Team |
6 | 31 | Mon Jul 21, 2008 1:03 pm jenandjacey |
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Vigabatrin Post your Vigabatrin experiences and questions here. Moderator Moderator Team |
27 | 129 | Wed Jul 23, 2008 4:10 am Nat's Dad |
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Ganaxolone A new medication being evaluated for Infantile Spasms. Moderator Moderator Team |
12 | 35 | Wed Feb 13, 2008 3:52 am pansitoo |
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Conventional Treatments Discuss conventional treatments that don't have an individual catagory. Moderator Moderator Team |
18 | 139 | Mon Jul 14, 2008 10:43 pm Shannon |
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The Ketogenic Diet Discuss the use of the Ketogenic Diet for seizure control. Moderators gthall, Moderator Team |
24 | 78 | Wed Jul 09, 2008 7:32 pm brandikay |
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Alternative Treatments Discuss HBOT, Craniosacral Therapy, or anything else that may be considered an alternative therapy. Moderator Moderator Team |
12 | 51 | Wed Jul 16, 2008 12:31 pm jenandjacey |
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Surgery Discuss surgery options for IS. Moderator Moderator Team |
5 | 13 | Wed May 07, 2008 1:11 am ian |
| Diagnosis | ||||
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Cryptogenic/Idiopathic Don't have a cause for your child's IS? Post here. Moderator Moderator Team |
6 | 42 | Wed Jun 11, 2008 1:27 pm Mima |
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Down's Syndrome Does your child have DS in addition to IS? Moderators Fortyhall, Moderator Team |
13 | 70 | Thu Jul 24, 2008 5:11 am msalzman6 |
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Other Sympomatic Do you have a cause that is not listed? If so please post here with the cause as the title. Moderator Moderator Team |
11 | 33 | Wed May 14, 2008 7:27 pm PLR |
| After Infantile Spasms | ||||
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Seizure Free If your child is seizure free tell us your success story. Moderator Moderator Team |
27 | 88 | Sat May 10, 2008 2:17 pm tkzrothzen |
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Intractable Epilepsy and Other Seizure Disorders Has you child progressed to a diagnoses other than IS. Moderators gthall, Moderator Team |
3 | 14 | Fri Jul 18, 2008 12:54 pm jenandjacey |
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Lennox-Gastaut Syndrome Many children with IS later become diagnosed with Lennox-Gastaut Syndrome. This is an area for parents to discuss LGS whether your child progressed from IS to LGS or it was their only diagnosis. Moderators gthall, Moderator Team |
9 | 24 | Thu Jul 03, 2008 2:15 pm keri kennedy |
| Other | ||||
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Equipment Exchange Do you have a wheelchair, stander, or other equipment that you are not longer using or are you looking for equipment? If so post it here. Moderator Moderator Team |
6 | 10 | Tue Jul 01, 2008 6:30 pm JLS2304 |
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Therapy Discuss and ask questions related to therapy here. Moderator Moderator Team |
6 | 34 | Thu May 29, 2008 4:16 pm keri kennedy |
| Studies, Inspiration, Other Articles, and Links | ||||
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Medical Studies and Reports Moderator Moderator Team |
3 | 8 | Tue Apr 18, 2006 2:31 pm Fortyhall |
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Inspiration Moderator Moderator Team |
15 | 18 | Fri Nov 23, 2007 3:41 am Debbie |
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Other Articles Moderator Moderator Team |
4 | 5 | Sun Feb 25, 2007 2:44 pm Mike |
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Useful Links Moderator Moderator Team |
4 | 10 | Mon Jan 14, 2008 1:32 pm Mike |
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| In total there are 5 users online :: 2 Registered, 0 Hidden and 3 Guests [ Administrator ] [ Moderator ] Most users ever online was 26 on Fri Apr 11, 2008 10:38 pm Registered Users: akizzia, dshoenthal |
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